Family adaptation in families of individuals with Down syndrome from 12 countries.
ผู้เขียน :
Marcia Van Riper
,
Wannee Deoisres
เผยแพร่วันที่ :
1 ธ.ค. 2566
ประเภท :
บทความวิจัยที่ตีพิมพ์ในวารสารวิชาการระดับนานาชาติ
วารสารวิชาการ :
American Journal of Medical Genetics Part C: Seminars in Medical Genetics
เล่มที่ :
ฉบับที่ :
หน้า :
ผู้เผยแพร่ :
Wiley Publisher
รายละเอียด :
Our current understanding of adaptation in families of individuals with Down syndrome (DS) is based primarily on findings from studies focused on participants from a
single country. Guided by the Resiliency Model of Family Stress, Adjustment, and
Adaptation, the purpose of this cross-country investigation, which is part of a larger,
mixed methods study, was twofold: (1) to compare family adaptation in 12 countries,
and (2) to examine the relationships between family variables and family adaptation.
The focus of this study is data collected in the 12 countries where at least 30 parents
completed the survey. Descriptive statistics were generated, and mean family adaptation was modeled in terms of each predictor independently, controlling for an
effect on covariates. A parsimonious composite model for mean family adaptation
was adaptively generated. While there were cross-country differences, standardized
family adaptation mean scores fell within the average range for all 12 countries. Key
components of the guiding framework (i.e., family demands, family appraisal, family
resources, and family problem-solving communication) were important predictors of
family adaptation. More cross-country studies, as well as longitudinal studies, are
needed to fully understand how culture and social determinants of health influence
family adaptation in families of individuals with DS.
ลิงค์ :